Celine Dion's Journey: Overcoming Stiff Person Syndrome in New Documentary Preview

Celine Dion's appreciation for the power of love is evident in her new documentary "I Am: Celine Dion." In the trailer, she highlights how her passion for singing and performing live motivates her, despite living with stiff person syndrome, a rare neurological disorder.

In a moving moment from the preview released on Thursday, the singer of "My Heart Will Go On" talks about the significance of performing for her. She shares, "I am putting in effort every day, but I have to admit, it has been tough. I miss it greatly. The people. I miss them."

She continues with tears in her eyes, "If I can't run, I'll walk. If I can't walk, I'll crawl. And I won't give up. I will keep going."

In the preview, viewers get a glimpse of Dion's extensive career through old footage of her performing in front of large crowds, contrasted with a more recent scene of her receiving comfort from family and friends as she deals with taking a break from her career to prioritize her health.

In December 2022, Dion made the decision to step back from her professional obligations in order to focus on her health after sharing her diagnosis of stiff person syndrome. She expressed that the condition was impacting her ability to sing in the way she was accustomed to.

Stiff person syndrome is a rare and progressive syndrome that affects the nervous system, specifically the brain and spinal cord. This condition causes spasms and muscle rigidity, as explained by the National Institute of Neurological Disorders and Stroke.

Dion aims to bring attention to this disorder through the "I Am" documentary. In a statement released in January, she expressed her desire to document this aspect of her life in order to raise awareness about this little-known condition and to offer support to others who may also have been diagnosed with it.

The film offers an intimate look into Dion's life as she opens up about her battle with her condition and the sacrifices she has made to keep performing for her devoted fans.

In the trailer, Dion expresses the importance of her voice in guiding her life, stating, "My voice is the conductor of my life. I need my instrument."

“I Am: Celine Dion” will be available to stream on Prime Video on June 25.

Editor's P/S:

Celine Dion's unwavering determination in the face of adversity is deeply inspiring. Her passion for her craft and her resilience in the face of a debilitating condition are a testament to the transformative power of love. The documentary "I Am: Celine Dion" offers a poignant glimpse into her journey, showcasing her strength and vulnerability as she navigates the challenges of stiff person syndrome.

Dion's words, "If I can't run, I'll walk. If I can't walk, I'll crawl," encapsulate her indomitable spirit. Despite the limitations imposed by her condition, she remains committed to her art and to connecting with her fans. The documentary not only celebrates Dion's extraordinary talent but also raises awareness about a rare and debilitating disorder, highlighting the importance of support and understanding for those who live with chronic illnesses.